We offer a selection of health-related items that may be beneficial to people with CVID or other health conditions. All items are provided through Be aware that Amazon offers Subscribe & Save items that you can set up to be delivered to your home anywhere from monthly to every 6 months.

Posted in Uncategorized

The New CVID Awareness Challenge

Hi Everyone,

We have a new challenge that we hope will go viral much like the ALS Ice-Bucket Challenge did. Because CVID is a very rare disease, it has very little funding for research, and many doctors have never even heard of it. For that reason, Primary Immune (PI) disease patients started the Pie for PI Challenge. CVID is the most common disease under the PI umbrella, but there are over 250 different types of PI diseases. In order to do the challenge, get a pie pan full of pie or whipped cream and either throw it in your own face or have someone else do it to you. Make a video of the act and upload it to, Facebook, or other social media (make sure you set the post to public), share the video and challenge your friends to complete the do the same  in 24 hours. Please be sure to mention that financial donations can be made to the Immunde Deficiency Foundation (IDF) , the Jeffrey Moddell Foundation (JMF), or if you would prefer to donate plasma, then that would be appreciated too. For more information on the Pie for PI Challenge, please visit the Facebook page

Thanks for participating, and have fun!

Here’s Steve’s Pie for PI Challenge video:

Posted in Uncategorized

I am Zebra Strong

I just want to take the time to thank everyone for all the support. This website has given me a new strength in life again. Four months ago I was just waiting to die, I had to quit my job and I gave up in life. Sure I would love to be working right now but my body will just not physically allow me at this time. Working on this site takes my mind off of all the bad and turns it into good because I am fighting for all you Zebras out there as we need more awareness for CVID. I will continue this fight until my heart stops and god no longer allows me to do this. I love you all!!! I have an appointment on December 4 2013 at my immunology doctor at Penn State Hershey Medical Center. I am going to ask him to post a few things on the site from time to time. That would be incredible!

Posted in Blog, Uncategorized Tagged with: , , , , , ,


free banner exchange

Recent Comments